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Category Archives: Miscellaneous
Pity
I wrote this on Facebook yesterday (18.11.21). Seeing as I’ve neglected the blog for far too long, thought I’d add it here too. Bear with me, my people. Hope this makes sense. Here’s The Floret, looking fabulous in her new … Continue reading
Posted in Miscellaneous
Tagged ASD, Autism, awarenessmatters, Carers, CdLS, charity, children, childreninneed, cleftpalate, Cornelia de Lange, Cornelia de Lange Syndrome, Disability, disabilityawareness, learningdisability, Mummy blog, nonspeaking, nonverbal, parentcarers, PMLD, SEND blogger, special needs
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Stop the clocks
Well Tiger, change is afoot and I feel the need to document it. Whilst we’re all prepared, I’ve got very mixed feelings right now – flitting from optimism to dread – as tomorrow I’m having to let go of you … Continue reading
The 10 Year Challenge
I’ve noticed these 10-year challenge things floating around on the interweb recently and thought I’d use a similar theme for a blog post. However, mine won’t be a “Ooh, look at us! weren’t we fabulously glamorous then…and we haven’t changed … Continue reading
Posted in Miscellaneous, Parenting, Syndromes/Special Needs
Tagged ASD, Autism, Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Diagnosis, Disability, Family, Friendship, genetics, Love, Mummy blog, Parenting, Rare Disease, SEN, SEND, SEND blogger, special needs
4 Comments
Five years
Blimey! Has it been five years since I took a deep intake of breath and pressed the publish button? Why, yes, I believe it has! I have exhaled since then, honest!…probably disappointing a few people along … Continue reading
Posted in Miscellaneous
Tagged Child, Disability, Education, Friendship, genetics, Love, Mummy blog, Parenting, Rare Disease, SEN, SEND, SEND blogger, Support
4 Comments
Terms and Conditions
Or, otherwise entitled… PACT-G Once upon a time; many, many moons ago, my parents bought me a piano. It lived in my fathers study and alongside the weekly piano lessons, I was advised that I was expected … Continue reading
Posted in Education, Miscellaneous, Parenting, Speech, language and communication, Syndromes/Special Needs
Tagged anxiety, ASD, Autism, Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Diagnosis, Disability, Education, Family, Love, Mummy blog, PACT-G, Parenting, Rare Disease, Research, SEN, SEND, SEND blogger, SMC1A, special needs, Success, Support
3 Comments
Cringe!
Or, otherwise entitled… Fish, chip and ketchup confetti I’ve said it many times (and I’ll undoubtedly keep on saying it!)…parenting can be hard. Really hard. Add into the mix some additional needs and your parenting role gets a WHOLE … Continue reading
Posted in Miscellaneous, Parenting, Silly stuff
Tagged ASD, Autism, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Disability, Family, holidays, Mummy blog, Parenting, Rare Disease, SEN, SEND, SEND blogger, SMC1A
4 Comments
Invisible child
This needed to be written today. I’ve no idea why. Hope it makes sense. Here goes: A client A case A patient A statistic A budget A diagnosis A Service user A name on a database And to some, … Continue reading
Posted in Miscellaneous, Parenting, Syndromes/Special Needs
Tagged ASD, Autism, Child, Childhood, Disability, Family, genetics, Love, Mummy blog, Parenting, Rare Disease, SEN, SEND, SEND blogger, special needs
4 Comments
Let that sink in
There’s a Facebook post that seems to have been doing the rounds recently. I can’t recall word for word, but it goes something like: Remember how hard it was caring for a newborn? Many parents of kids with additional needs … Continue reading
Posted in Miscellaneous, Parenting, Syndromes/Special Needs
Tagged Additional needs, ASD, Autism, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Disability, Family, genetics, Love, Mummy blog, Parenting, SEN, SEND, SEND blogger, special needs, Support
10 Comments
Alpacalicious!
There isn’t much opportunity for the residents of Broccoli HQ to do anything spontaneous these days. Well, discounting stuff like spontaneously falling down, impulsively throwing yourself backwards with your eyes closed, biting and other generally hazardous shenanigans (btw, I’m referring … Continue reading
Posted in Miscellaneous
Tagged Alpaca, ASD, Autism, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Disability, Family, Friendship, holidays, Love, Mummy blog, Parenting, SEN, SMC1A, special needs
4 Comments
50 – grenades and glitter
“Well, can I just say, you don’t look 49” she said. “Why thank you very much” I replied, whilst standing in front of her, completely naked from the waist up. (Fear not gentle reader, you HAVE clicked on the … Continue reading
Posted in Miscellaneous
Tagged Birthday, CdLS, Cornelia de Lange Syndrome, Mummy blog, Parenting, SEND, SEND blogger
12 Comments
my kid loves broccoli 