Author Archives: mykidlovesbroccoli

FEEDING TUBE AWARENESS WEEK

Posted on February 9, 2022 by mykidlovesbroccoli

I couldn’t let the week go by without doing a post, especially as The (baby) Floret was fed by tubes. I’ve written about this before and mentioned that, initially, it was a scary thing to do. My mum (a former … Continue reading →

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Book: Cornelia de Lange Syndrome – A shared journey

Posted on January 3, 2022 by mykidlovesbroccoli

Hello! Happy New Year and all that. I have some exciting news for you. Well, you may already know if you follow us on Facebook, but I’m sharing in case you didn’t. There’s a new book recently published called Cornelia … Continue reading →

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Pity

Posted on November 19, 2021 by mykidlovesbroccoli

I wrote this on Facebook yesterday (18.11.21). Seeing as I’ve neglected the blog for far too long, thought I’d add it here too. Bear with me, my people. Hope this makes sense. Here’s The Floret, looking fabulous in her new … Continue reading →

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CdLS – Facts matter

Posted on November 3, 2021 by mykidlovesbroccoli

Hello there!  Apologies for the radio silence, I’ve been busy (mostly procrastinating really) and neglected the blog. My bad.  But I’ve popped on today to have a bit of a ramble and share something very important to me…and to lots … Continue reading →

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I’ve written a book!

Posted on April 14, 2021 by mykidlovesbroccoli

I’ve written a book! After my last blog post (bit glum, tbh) I thought I’d pop on here and just mention that I wrote a book. …and I’m a bit proud. Well, I’m very proud, actually. Hence this blog post. … Continue reading →

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A Day of Reflection

Posted on March 23, 2021 by mykidlovesbroccoli

12 months. …and I’m sorry.  So very sorry. I’m sorry for the 125,000 plus deaths. I’m sorry for the drift and delay.  I’m sorry any of this isn’t deemed important enough for there to be a review now. I’m sorry … Continue reading →

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Stop the clocks

Posted on September 3, 2020 by mykidlovesbroccoli

Well Tiger, change is afoot and I feel the need to document it.  Whilst we’re all prepared, I’ve got very mixed feelings right now – flitting from optimism to dread – as tomorrow I’m having to let go of you … Continue reading →

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I See YOU! – The 2020 update

Posted on August 24, 2020 by mykidlovesbroccoli

Some years back now I wrote a post called “I see YOU”.  It turned out to be quite popular and seemed to resonate with other parents. Since then, I’ve seen very similar posts shared across social media. And I’m okay … Continue reading →

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Oink Oink

Posted on July 10, 2020 by mykidlovesbroccoli

  So, Plan A: Take a short rest from the blog, free up some time, focus on The Book of Broccoli, get it done whilst ensuring I was 100% available for Hannah during her transition (I’ll get to that in … Continue reading →

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To be continued…

Posted on April 24, 2019 by mykidlovesbroccoli

      Hello you!   Long time, no see!   How you doing?   I’ve got a spare five minutes (it was a toss up – either talk to you or start tackling the ironing before I have to … Continue reading →

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