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Tag Archives: genetics
Book: Cornelia de Lange Syndrome – A shared journey
Hello! Happy New Year and all that. I have some exciting news for you. Well, you may already know if you follow us on Facebook, but I’m sharing in case you didn’t. There’s a new book recently published called Cornelia … Continue reading
Posted in Education, Syndromes/Special Needs
Tagged #blogger, #book, CdLS, cdlslife, cdlsstrong, Child, Cornelia de Lange Syndrome, corneliadelange, Disability, Family, genes, genetics, health, lifewithcdls, livingwithararesyndrome, Mummy blog, mummyblogger, mykidlovesbroccoli, Parenting, raredisease, SEND blogger, sendblogger, smallbutmighty, special needs, strongertogether, syndromes
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I See YOU! – The 2020 update
Some years back now I wrote a post called “I see YOU”. It turned out to be quite popular and seemed to resonate with other parents. Since then, I’ve seen very similar posts shared across social media. And I’m okay … Continue reading
Posted in Parenting, Syndromes/Special Needs
Tagged ASD, Autism, CdLS, Child, Childhood, Cornelia de Lange, Cornelia de Lange Syndrome, Disability, Family, genetics, Love, Parenting, Rare Disease, SEN, SEND, SMC1A, Support, syndromes
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The 10 Year Challenge
I’ve noticed these 10-year challenge things floating around on the interweb recently and thought I’d use a similar theme for a blog post. However, mine won’t be a “Ooh, look at us! weren’t we fabulously glamorous then…and we haven’t changed … Continue reading
Posted in Miscellaneous, Parenting, Syndromes/Special Needs
Tagged ASD, Autism, Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Diagnosis, Disability, Family, Friendship, genetics, Love, Mummy blog, Parenting, Rare Disease, SEN, SEND, SEND blogger, special needs
4 Comments
Five years
Blimey! Has it been five years since I took a deep intake of breath and pressed the publish button? Why, yes, I believe it has! I have exhaled since then, honest!…probably disappointing a few people along … Continue reading
Posted in Miscellaneous
Tagged Child, Disability, Education, Friendship, genetics, Love, Mummy blog, Parenting, Rare Disease, SEN, SEND, SEND blogger, Support
4 Comments
Invisible child
This needed to be written today. I’ve no idea why. Hope it makes sense. Here goes: A client A case A patient A statistic A budget A diagnosis A Service user A name on a database And to some, … Continue reading
Posted in Miscellaneous, Parenting, Syndromes/Special Needs
Tagged ASD, Autism, Child, Childhood, Disability, Family, genetics, Love, Mummy blog, Parenting, Rare Disease, SEN, SEND, SEND blogger, special needs
4 Comments
Let that sink in
There’s a Facebook post that seems to have been doing the rounds recently. I can’t recall word for word, but it goes something like: Remember how hard it was caring for a newborn? Many parents of kids with additional needs … Continue reading
Posted in Miscellaneous, Parenting, Syndromes/Special Needs
Tagged Additional needs, ASD, Autism, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Disability, Family, genetics, Love, Mummy blog, Parenting, SEN, SEND, SEND blogger, special needs, Support
10 Comments
Happy Birthday Hannah – 2018
Hello Tiger, Mummy’s been a bit lackadaisical on here, so I thought I’d write you a blog post, because – as if you didn’t know already – you’ve had another birthday. Hope you don’t mind me sharing this with everyone … Continue reading
Posted in Miscellaneous, Parenting
Tagged ASD, Autism, Birthday, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Disability, Family, genetics, Love, Mummy blog, Parenting, Rare Disease, SEN, SEND, SEND blogger, SMC1A
4 Comments
For New Parents
Oooh, hello! You found us…yay! You know what?…I’m SO pleased you did! Now, just so you know, I didn’t know what to call this post. So the title (For New Parents) might not be too accurate as some of … Continue reading
Posted in Parenting, Syndromes/Special Needs
Tagged Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Diagnosis, Disability, emotional health, Family, genetics, Love, Parenting, Rare Disease, SEN, SEND, SMC1A, special needs, Support
6 Comments
STOP!
I need to try and get up shortly, make myself look almost human, but hop in for a minute, let’s have a chat *pats duvet in inviting manner and moves over*. Oh sorry *gathers mountain of tissues (ew!)…and … Continue reading
Posted in Miscellaneous, Parenting
Tagged Autism, Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Disability, Family, genetics, health, Parenting, SEN, SEND, SEND blogger, SMC1A, special needs
4 Comments
If I told you what the title is, you’d never read on…
Happy New Year my lovelies! I hope this year is a happy, healthy one for you all. For our first post of the year – and to celebrate our blogs fourth birthday (woo hoo, yay, go us!) … Continue reading
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