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Tag Archives: Carers
Pity
I wrote this on Facebook yesterday (18.11.21). Seeing as I’ve neglected the blog for far too long, thought I’d add it here too. Bear with me, my people. Hope this makes sense. Here’s The Floret, looking fabulous in her new … Continue reading
Posted in Miscellaneous
Tagged ASD, Autism, awarenessmatters, Carers, CdLS, charity, children, childreninneed, cleftpalate, Cornelia de Lange, Cornelia de Lange Syndrome, Disability, disabilityawareness, learningdisability, Mummy blog, nonspeaking, nonverbal, parentcarers, PMLD, SEND blogger, special needs
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The 10 Year Challenge
I’ve noticed these 10-year challenge things floating around on the interweb recently and thought I’d use a similar theme for a blog post. However, mine won’t be a “Ooh, look at us! weren’t we fabulously glamorous then…and we haven’t changed … Continue reading
Posted in Miscellaneous, Parenting, Syndromes/Special Needs
Tagged ASD, Autism, Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Diagnosis, Disability, Family, Friendship, genetics, Love, Mummy blog, Parenting, Rare Disease, SEN, SEND, SEND blogger, special needs
4 Comments
Terms and Conditions
Or, otherwise entitled… PACT-G Once upon a time; many, many moons ago, my parents bought me a piano. It lived in my fathers study and alongside the weekly piano lessons, I was advised that I was expected … Continue reading
Posted in Education, Miscellaneous, Parenting, Speech, language and communication, Syndromes/Special Needs
Tagged anxiety, ASD, Autism, Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Diagnosis, Disability, Education, Family, Love, Mummy blog, PACT-G, Parenting, Rare Disease, Research, SEN, SEND, SEND blogger, SMC1A, special needs, Success, Support
3 Comments
For New Parents
Oooh, hello! You found us…yay! You know what?…I’m SO pleased you did! Now, just so you know, I didn’t know what to call this post. So the title (For New Parents) might not be too accurate as some of … Continue reading
Posted in Parenting, Syndromes/Special Needs
Tagged Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Diagnosis, Disability, emotional health, Family, genetics, Love, Parenting, Rare Disease, SEN, SEND, SMC1A, special needs, Support
6 Comments
STOP!
I need to try and get up shortly, make myself look almost human, but hop in for a minute, let’s have a chat *pats duvet in inviting manner and moves over*. Oh sorry *gathers mountain of tissues (ew!)…and … Continue reading
Posted in Miscellaneous, Parenting
Tagged Autism, Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Disability, Family, genetics, health, Parenting, SEN, SEND, SEND blogger, SMC1A, special needs
4 Comments
Over to you, Hannah!
Well, my people, I can confidently say that since Hannah came along, life has never been dull. Not one bit! As I’ve said before, there’ve been ups…aaaaaaaand quite a few downs; just like a rollercoaster. (In this respect, I guess … Continue reading
Posted in Miscellaneous, Parenting, Syndromes/Special Needs
Tagged Autism, Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Disability, Family, genetics, Love, Mummy blog, Parenting, SEN, SEND, SEND blogger, SMC1A, special needs, Success
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It’s beginning to look a lot like Christmas
Or otherwise entitled… It’s probably best just to ASK, really. Oh crikey, it’s coming! I don’t know about you, but Christmas seems to start earlier each year! Call me Ebenezer, but the ‘countdown to … Continue reading
Posted in Miscellaneous, Parenting, Syndromes/Special Needs
Tagged Autism, Carers, CdLS, Child, Childhood, Christmas, Cornelia de Lange Syndrome, Disability, Family, genetics, holidays, Mummy blog, Parenting, Santa, SEN, SEND, SEND blogger, SMC1A, special needs
4 Comments
Once upon a time
Oh, to be a child again! Even though it was *coughs* some considerable time ago, I recall the bliss of opening a book and jumping into magical worlds filled with enchanted forests and mystical creatures; worlds where good triumphed over … Continue reading
Posted in Miscellaneous, Parenting, Syndromes/Special Needs
Tagged Autism, Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Death, Disability, Family, genetics, Love, Mummy blog, Parenting, SEND, SEND blogger, SMC1A, special needs
10 Comments
One of those ‘something in my eye’ moments
If you gave me a pound for every appointment I’ve attended for Hannah since her birth, I’d probably be able to afford that house I’ve got my eye on in Cornwall. I kid you not! (Don’t worry, that’s the last … Continue reading
Posted in Parenting, Syndromes/Special Needs
Tagged Autism, Carers, CdLS, Child, Cornelia de Lange Syndrome, Disability, emotional health, genetics, health, meetings, Mummy blog, Parenting, SEND, SEND blogger, SMC1A, special needs
2 Comments
Did you have a nice summer?
Did you have a nice summer? It used to be one of those questions I’d dread being asked. Mostly because my feeble response (probably including some grunting and gurning) would more than likely … Continue reading
Posted in Miscellaneous, Parenting, Syndromes/Special Needs
Tagged Autism, Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Disability, Family, holidays, Mummy blog, Parenting, SEND, SEND blogger, SMC1A, special needs
2 Comments
my kid loves broccoli 