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Tag Archives: Support
I See YOU! – The 2020 update
Some years back now I wrote a post called “I see YOU”. It turned out to be quite popular and seemed to resonate with other parents. Since then, I’ve seen very similar posts shared across social media. And I’m okay … Continue reading
Posted in Parenting, Syndromes/Special Needs
Tagged ASD, Autism, CdLS, Child, Childhood, Cornelia de Lange, Cornelia de Lange Syndrome, Disability, Family, genetics, Love, Parenting, Rare Disease, SEN, SEND, SMC1A, Support, syndromes
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Five years
Blimey! Has it been five years since I took a deep intake of breath and pressed the publish button? Why, yes, I believe it has! I have exhaled since then, honest!…probably disappointing a few people along … Continue reading
Posted in Miscellaneous
Tagged Child, Disability, Education, Friendship, genetics, Love, Mummy blog, Parenting, Rare Disease, SEN, SEND, SEND blogger, Support
4 Comments
Terms and Conditions
Or, otherwise entitled… PACT-G Once upon a time; many, many moons ago, my parents bought me a piano. It lived in my fathers study and alongside the weekly piano lessons, I was advised that I was expected … Continue reading
Posted in Education, Miscellaneous, Parenting, Speech, language and communication, Syndromes/Special Needs
Tagged anxiety, ASD, Autism, Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Diagnosis, Disability, Education, Family, Love, Mummy blog, PACT-G, Parenting, Rare Disease, Research, SEN, SEND, SEND blogger, SMC1A, special needs, Success, Support
3 Comments
Let that sink in
There’s a Facebook post that seems to have been doing the rounds recently. I can’t recall word for word, but it goes something like: Remember how hard it was caring for a newborn? Many parents of kids with additional needs … Continue reading
Posted in Miscellaneous, Parenting, Syndromes/Special Needs
Tagged Additional needs, ASD, Autism, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Disability, Family, genetics, Love, Mummy blog, Parenting, SEN, SEND, SEND blogger, special needs, Support
10 Comments
For New Parents
Oooh, hello! You found us…yay! You know what?…I’m SO pleased you did! Now, just so you know, I didn’t know what to call this post. So the title (For New Parents) might not be too accurate as some of … Continue reading
Posted in Parenting, Syndromes/Special Needs
Tagged Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Diagnosis, Disability, emotional health, Family, genetics, Love, Parenting, Rare Disease, SEN, SEND, SMC1A, special needs, Support
6 Comments
my kid loves broccoli 