- Follow my kid loves broccoli on WordPress.com
Categories
- Education (11)
- Hannah's journey (1)
- Miscellaneous (73)
- Parenting (40)
- Silly stuff (19)
- Speech, language and communication (9)
- Syndromes/Special Needs (50)
- Therapy (5)
- Uncategorized (7)
Archives
- February 2022 (1)
- January 2022 (1)
- November 2021 (2)
- April 2021 (1)
- March 2021 (1)
- September 2020 (1)
- August 2020 (1)
- July 2020 (1)
- April 2019 (1)
- January 2019 (2)
- November 2018 (2)
- October 2018 (2)
- September 2018 (1)
- August 2018 (2)
- July 2018 (2)
- May 2018 (2)
- March 2018 (2)
- February 2018 (2)
- January 2018 (2)
- December 2017 (1)
- November 2017 (1)
- October 2017 (2)
- September 2017 (1)
- August 2017 (3)
- July 2017 (1)
- June 2017 (2)
- May 2017 (1)
- April 2017 (4)
- March 2017 (1)
- February 2017 (1)
- January 2017 (2)
- December 2016 (3)
- November 2016 (3)
- October 2016 (3)
- September 2016 (3)
- August 2016 (3)
- July 2016 (4)
- June 2016 (2)
- May 2016 (2)
- April 2016 (2)
- March 2016 (4)
- February 2016 (2)
- January 2016 (2)
- December 2015 (2)
- November 2015 (2)
- October 2015 (2)
- September 2015 (1)
- August 2015 (1)
- July 2015 (2)
- June 2015 (1)
- May 2015 (4)
- April 2015 (2)
- March 2015 (2)
- February 2015 (2)
- January 2015 (3)
- December 2014 (2)
- November 2014 (2)
- September 2014 (1)
- August 2014 (1)
- July 2014 (2)
- May 2014 (2)
- April 2014 (1)
- March 2014 (2)
- February 2014 (2)
- January 2014 (3)
We’re on Facebook too!
-
Join 131 other subscribers
Tag Archives: Rare Disease
I See YOU! – The 2020 update
Some years back now I wrote a post called “I see YOU”. It turned out to be quite popular and seemed to resonate with other parents. Since then, I’ve seen very similar posts shared across social media. And I’m okay … Continue reading
Posted in Parenting, Syndromes/Special Needs
Tagged ASD, Autism, CdLS, Child, Childhood, Cornelia de Lange, Cornelia de Lange Syndrome, Disability, Family, genetics, Love, Parenting, Rare Disease, SEN, SEND, SMC1A, Support, syndromes
Leave a comment
Oink Oink
So, Plan A: Take a short rest from the blog, free up some time, focus on The Book of Broccoli, get it done whilst ensuring I was 100% available for Hannah during her transition (I’ll get to that in … Continue reading
Posted in Education
Tagged ASD, Autism, CdLS, Cornelia de Lange Syndrome, Education, Family, Friendship, Learning Disability, Love, non-verbal, Parenting, PMLD, Rare Disease, School
4 Comments
The 10 Year Challenge
I’ve noticed these 10-year challenge things floating around on the interweb recently and thought I’d use a similar theme for a blog post. However, mine won’t be a “Ooh, look at us! weren’t we fabulously glamorous then…and we haven’t changed … Continue reading
Posted in Miscellaneous, Parenting, Syndromes/Special Needs
Tagged ASD, Autism, Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Diagnosis, Disability, Family, Friendship, genetics, Love, Mummy blog, Parenting, Rare Disease, SEN, SEND, SEND blogger, special needs
4 Comments
Five years
Blimey! Has it been five years since I took a deep intake of breath and pressed the publish button? Why, yes, I believe it has! I have exhaled since then, honest!…probably disappointing a few people along … Continue reading
Posted in Miscellaneous
Tagged Child, Disability, Education, Friendship, genetics, Love, Mummy blog, Parenting, Rare Disease, SEN, SEND, SEND blogger, Support
4 Comments
Terms and Conditions
Or, otherwise entitled… PACT-G Once upon a time; many, many moons ago, my parents bought me a piano. It lived in my fathers study and alongside the weekly piano lessons, I was advised that I was expected … Continue reading
Posted in Education, Miscellaneous, Parenting, Speech, language and communication, Syndromes/Special Needs
Tagged anxiety, ASD, Autism, Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Diagnosis, Disability, Education, Family, Love, Mummy blog, PACT-G, Parenting, Rare Disease, Research, SEN, SEND, SEND blogger, SMC1A, special needs, Success, Support
3 Comments
Cringe!
Or, otherwise entitled… Fish, chip and ketchup confetti I’ve said it many times (and I’ll undoubtedly keep on saying it!)…parenting can be hard. Really hard. Add into the mix some additional needs and your parenting role gets a WHOLE … Continue reading
Posted in Miscellaneous, Parenting, Silly stuff
Tagged ASD, Autism, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Disability, Family, holidays, Mummy blog, Parenting, Rare Disease, SEN, SEND, SEND blogger, SMC1A
4 Comments
Invisible child
This needed to be written today. I’ve no idea why. Hope it makes sense. Here goes: A client A case A patient A statistic A budget A diagnosis A Service user A name on a database And to some, … Continue reading
Posted in Miscellaneous, Parenting, Syndromes/Special Needs
Tagged ASD, Autism, Child, Childhood, Disability, Family, genetics, Love, Mummy blog, Parenting, Rare Disease, SEN, SEND, SEND blogger, special needs
4 Comments
Happy Birthday Hannah – 2018
Hello Tiger, Mummy’s been a bit lackadaisical on here, so I thought I’d write you a blog post, because – as if you didn’t know already – you’ve had another birthday. Hope you don’t mind me sharing this with everyone … Continue reading
Posted in Miscellaneous, Parenting
Tagged ASD, Autism, Birthday, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Disability, Family, genetics, Love, Mummy blog, Parenting, Rare Disease, SEN, SEND, SEND blogger, SMC1A
4 Comments
40 something sleeps
So, that’s it for another academic year in the UK. The summer holidays have commenced! And there’s no doubt there will have been lots of mascara run today and tissues crumpled as children leave to commence their next journey onto … Continue reading
Posted in Education
Tagged ASD, Autism, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Disability, Education, Family, Friendship, holidays, Parenting, Rare Disease, School, SEN, SEND, SMC1A, special needs
Leave a comment
The “They” Gang
Yesterday was #InternationalDayOfHappiness and, as a result, I posted a couple of things on Facebook. …this post is inspired by one of them. (Warning: Just so you know, I might get a tiny bit Mrs Ranty McRantipants…but … Continue reading
Posted in Miscellaneous, Syndromes/Special Needs
Tagged Autism, CdLS, Child, Cornelia de Lange Syndrome, Disability, Education, Family, health, Parenting, Rare Disease, SEN, SEND, SEND blogger, SMC1A
4 Comments
my kid loves broccoli 