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Category Archives: Education
Book: Cornelia de Lange Syndrome – A shared journey
Hello! Happy New Year and all that. I have some exciting news for you. Well, you may already know if you follow us on Facebook, but I’m sharing in case you didn’t. There’s a new book recently published called Cornelia … Continue reading
Posted in Education, Syndromes/Special Needs
Tagged #blogger, #book, CdLS, cdlslife, cdlsstrong, Child, Cornelia de Lange Syndrome, corneliadelange, Disability, Family, genes, genetics, health, lifewithcdls, livingwithararesyndrome, Mummy blog, mummyblogger, mykidlovesbroccoli, Parenting, raredisease, SEND blogger, sendblogger, smallbutmighty, special needs, strongertogether, syndromes
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Stop the clocks
Well Tiger, change is afoot and I feel the need to document it. Whilst we’re all prepared, I’ve got very mixed feelings right now – flitting from optimism to dread – as tomorrow I’m having to let go of you … Continue reading
Oink Oink
So, Plan A: Take a short rest from the blog, free up some time, focus on The Book of Broccoli, get it done whilst ensuring I was 100% available for Hannah during her transition (I’ll get to that in … Continue reading
Posted in Education
Tagged ASD, Autism, CdLS, Cornelia de Lange Syndrome, Education, Family, Friendship, Learning Disability, Love, non-verbal, Parenting, PMLD, Rare Disease, School
4 Comments
Terms and Conditions
Or, otherwise entitled… PACT-G Once upon a time; many, many moons ago, my parents bought me a piano. It lived in my fathers study and alongside the weekly piano lessons, I was advised that I was expected … Continue reading
Posted in Education, Miscellaneous, Parenting, Speech, language and communication, Syndromes/Special Needs
Tagged anxiety, ASD, Autism, Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Diagnosis, Disability, Education, Family, Love, Mummy blog, PACT-G, Parenting, Rare Disease, Research, SEN, SEND, SEND blogger, SMC1A, special needs, Success, Support
3 Comments
40 something sleeps
So, that’s it for another academic year in the UK. The summer holidays have commenced! And there’s no doubt there will have been lots of mascara run today and tissues crumpled as children leave to commence their next journey onto … Continue reading
Posted in Education
Tagged ASD, Autism, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Disability, Education, Family, Friendship, holidays, Parenting, Rare Disease, School, SEN, SEND, SMC1A, special needs
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Reduce Your Risk
It’s Cervical Cancer Prevention Week, so here’s our contribution to help raise awareness. Please be aware that if you continue reading this post, I will be discussing the beautiful female form, cervical smear tests, childbirth, vaginas (including mine!) profiteroles and … Continue reading
That time of year again
Well guys, it’s that time of year again. The end of term is coming up for school kids in the UK (Dear Lord, help us all!), parents evenings are being attended, end of year reports completed and summer (erm…hang on…WHAT … Continue reading
The Acceptance Speech
So, if you follow us on Facebook (Hello! *waves enthusiastically*) you’ll already know that Hannah received an award recently. Oh. M. G…..AN AWARD!!! You know, every day I’m proud of (and in awe of…and often completely jaded by) this frequently … Continue reading
Research
Or otherwise entitled… Don’t even try and attempt to get home on the M6 (motorway) on a Friday night Or…perhaps more obscurely entitled (but all will be revealed)… FINALLY!!! I’m a great fan of research, especially since Hannah came … Continue reading
Posted in Education, Miscellaneous, Syndromes/Special Needs
Tagged CdLS, Child, Cornelia de Lange Syndrome, Disability, Mummy blog, special needs
2 Comments
40 winks
Or, otherwise MUCH more aptly entitled… Our EHCP journey Now, before you settle down to read on, it’s only fair that I give you a bit of a ‘heads up’ about this post; because, in my opinion, it’s only suitable … Continue reading
Posted in Education
Tagged Cornelia de Lange Syndrome, Disability, Education, Education Health and Care Plan, EHCP, health, meetings, Mummy blog, Parenting, School, special needs
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