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Tag Archives: health
Book: Cornelia de Lange Syndrome – A shared journey
Hello! Happy New Year and all that. I have some exciting news for you. Well, you may already know if you follow us on Facebook, but I’m sharing in case you didn’t. There’s a new book recently published called Cornelia … Continue reading
Posted in Education, Syndromes/Special Needs
Tagged #blogger, #book, CdLS, cdlslife, cdlsstrong, Child, Cornelia de Lange Syndrome, corneliadelange, Disability, Family, genes, genetics, health, lifewithcdls, livingwithararesyndrome, Mummy blog, mummyblogger, mykidlovesbroccoli, Parenting, raredisease, SEND blogger, sendblogger, smallbutmighty, special needs, strongertogether, syndromes
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The “They” Gang
Yesterday was #InternationalDayOfHappiness and, as a result, I posted a couple of things on Facebook. …this post is inspired by one of them. (Warning: Just so you know, I might get a tiny bit Mrs Ranty McRantipants…but … Continue reading
Posted in Miscellaneous, Syndromes/Special Needs
Tagged Autism, CdLS, Child, Cornelia de Lange Syndrome, Disability, Education, Family, health, Parenting, Rare Disease, SEN, SEND, SEND blogger, SMC1A
4 Comments
STOP!
I need to try and get up shortly, make myself look almost human, but hop in for a minute, let’s have a chat *pats duvet in inviting manner and moves over*. Oh sorry *gathers mountain of tissues (ew!)…and … Continue reading
Posted in Miscellaneous, Parenting
Tagged Autism, Carers, CdLS, Child, Childhood, Cornelia de Lange Syndrome, Disability, Family, genetics, health, Parenting, SEN, SEND, SEND blogger, SMC1A, special needs
4 Comments
Reduce Your Risk
It’s Cervical Cancer Prevention Week, so here’s our contribution to help raise awareness. Please be aware that if you continue reading this post, I will be discussing the beautiful female form, cervical smear tests, childbirth, vaginas (including mine!) profiteroles and … Continue reading
One of those ‘something in my eye’ moments
If you gave me a pound for every appointment I’ve attended for Hannah since her birth, I’d probably be able to afford that house I’ve got my eye on in Cornwall. I kid you not! (Don’t worry, that’s the last … Continue reading
Posted in Parenting, Syndromes/Special Needs
Tagged Autism, Carers, CdLS, Child, Cornelia de Lange Syndrome, Disability, emotional health, genetics, health, meetings, Mummy blog, Parenting, SEND, SEND blogger, SMC1A, special needs
2 Comments
Surgery
And so my lovelies, Hannah will be having her dental surgery soon. We’ve had to wait since November 2016 for Hannah to have this done and, whilst I know she needs it and has sometimes been in a great deal … Continue reading
Posted in Miscellaneous, Syndromes/Special Needs
Tagged anxiety, Carers, CdLS, Child, Cornelia de Lange Syndrome, Disability, health, Love, Mummy blog, Parenting, SEND, SMC1A, special needs
4 Comments
Let’s talk about mental health
Talking about mental health issues seems to have been swept under the carpet a bit, don’t you think? (It’s just semantics, but I prefer to use the term ‘emotional health’ in this post…hope you don’t mind…bit tough if you do. Soz about … Continue reading
Posted in Miscellaneous
Tagged anxiety, Carers, CdLS, Child, Cornelia de Lange Syndrome, Disability, emotional health, health, mental health, Mummy blog, Parenting, SMC1A, special needs
2 Comments
Sometimes, you just gotta put those Super Mama knickers on!
Or, otherwise entitled… Annie may just (definitely) have another rant! Or… I couldn’t make this stuff up if I tried! “Super Mama Knickers” Definition (mine): A fictional* undergarment (pictured) possessing special powers. Typically worn when a boost of empowerment … Continue reading
Posted in Miscellaneous, Parenting, Syndromes/Special Needs
Tagged Carers, CdLS, Child, Cornelia de Lange Syndrome, Disability, genetics, health, Parenting, SMC1A, special needs
2 Comments
‘Tis the season to be jolly
Or, otherwise more aptly entitled… Spare a thought I wasn’t really sure how to start this post, so I guess I’ll just ramble on for a bit (nothing new there then, eh?) and hope it makes sense. … Continue reading
Posted in Miscellaneous, Syndromes/Special Needs
Tagged CdLS, Child, Christmas, Cornelia de Lange Syndrome, Disability, Family, health, holidays, Love, Parenting, SEND blogger, special needs
2 Comments
5%
I’m feeling a bit weird right now. (At this disclosure, I can almost hear my friends laughing and saying “No news there, then!” – thanks guys…I KNOW that’s why you love me *blows kisses*) So, I’ve ditched what I was … Continue reading
Posted in Syndromes/Special Needs
Tagged CdLS, Child, Cornelia de Lange Syndrome, Disability, genetics, health, Mummy blog, Parenting, SMC1A, special needs
8 Comments
my kid loves broccoli 